Phoenix Rising ME/CFS Forums

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Welcome to Phoenix Rising!

Created in 2008, Phoenix Rising is the largest and oldest forum dedicated to furthering the understanding of, and finding treatments for, complex chronic illnesses such as chronic fatigue syndrome (ME/CFS), fibromyalgia, long COVID, postural orthostatic tachycardia syndrome (POTS), mast cell activation syndrome (MCAS), and allied diseases.

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Phoenix Rising ME/CFS Forums

Category	Threads	Messages
News, Research, and Advocacy ME/CFS Events	301	6.5K
Zoom, Oct 4, 1:00 EDT, Research Roundtable Oct 4, 2024 by Violeta
News and Research ME/CFS and other health news and research Sub-forums: General ME/CFS News \| Latest ME/CFS Research \| Other Health News and Research \| Long COVID and Coronavirus \| Active Clinical Studies	16.4K	250.7K
Phoenix Rising Articles Brain Infection and Neuroinflammation in ME/CFS and Post-COVID Encephalitis: A Case-Based Perspective	16.4K	250.7K
Advocacy Advocacy, fundraising and petitions Sub-forums: Action Alerts and Advocacy \| Advocacy Projects \| Millions Missing Campaign \| Petitions	2.8K	51.8K
Fundraising BOMF Global Study	2.8K	51.8K
ME Registry - both healthy and ill participants needed - easy to sign up Jun 16, 2025 by Byles
General ME/CFS Discussion A place to discuss general issues related to ME/CFS that don't seem to fit in any other forum. If you want a more private discussion, you can post in the 'Members Only ME/CFS Discussion' forum.	5.6K	108.9K
Good day went down hill quick 48 minutes ago by I am sick	5.6K	108.9K
Symptoms and Treatments Symptoms Sub-forums: General Symptoms \| Post-Exertional Malaise and Fatigue \| Pain and Soreness \| Neurological and Sensory Sensitivity \| Cognition, Brain fog, and Emotion \| Sleep \| Peripheral Neuropathy & SFN \| Immunology, Inflammation, Allergies \| Hypersensitivity, Intolerance, MCS \| Dysautonomia: Problems Standing, OI, POTS \| Dysautonomia: Cardiovascular, Respiratory, etc. \| Hormones, HPA axis, etc. \| Gastrointestinal: IBS, SIBO & Urinary \| Skeleton, Skin, Hair, Teeth, and Nails	6.3K	103.8K
How to use Garmin watch to reduce stress, charge body battery Today at 4:55 PM by hapl808	6.3K	103.8K
Treatment General Treatment Sub-forums: Antivirals, Antibiotics and Immune Modulators \| GcMAF \| Rituximab: News and Research \| Methylation, B12, Glutathione, etc. \| Hypersensitivity/MCS Treatment \| Gastrointestinal Treatment \| Alternative Therapies	12.8K	236.3K
cmilk thistle powder (extract) questions Sunday at 8:36 PM by Carl	12.8K	236.3K
Living with ME/CFS Lifestyle management, finances, relationships (members only), spirituality, and a place for parents and caregivers to meet (members only). Sub-forums: Information and Resources \| Lifestyle Management \| Finances, Work, Disability and Housing \| Disease Onset and Progression \| Spirituality and ME/CFS	1.8K	30.3K
Insightful Reincarnation Stories Saturday at 4:36 PM by Rufous McKinney	1.8K	30.3K
Doctors and Diagnostics Doctors, diagnostic guidelines, and lab tests Sub-forums: ME/CFS Doctors \| Diagnostic Guidelines and Laboratory Testing \| Genetic Testing and SNPs	3.1K	41.8K
Doctors in and around London, UK Friday at 6:05 PM by ruben	3.1K	41.8K
Related Conditions Comorbid Conditions, Differential Diagnoses, etc. Sub-forums: Fibromyalgia \| Lyme and Bacterial Infections \| Viral Infections \| Fungal Infection (Yeast, Candida, Mold) \| Mast Cell Activation (MCAS) \| Connective Tissue Disorders: Collagen, EDS, CCI \| Thyroid Dysfunction \| Adrenal Dysfunction \| Multiple Sclerosis \| Autoimmunity and Autoimmune Diseases	2.3K	41K
Vascular Compression: Summary of Discussions Aug 1, 2025 by Cristian	2.3K	41K
In Memory of ...	82	1.5K
In memory of Walker Storz (frozenborderline) Jul 29, 2025 by Rufous McKinney	82	1.5K
Miscellaneous Resources, Projects, and Archives Sub-forums: Google Site Search \| XMRV Archives \| XMRV Research and Replication Studies \| XMRV Testing, Treatment and Transmission \| Media, Interviews, Blogs, Talks, Events about XMRV \| Content Team Resources \| Institute of Medicine (IOM) Government Contract	2.5K	66.6K
My experience with ARVs Friday at 11:11 AM by redo	2.5K	66.6K

Latest Blog Entries

Maybe not having done as many model ships as I'd have liked to isn't a bad thing after all by southwestforests Updated: 26 minutes ago The Secret World of Mini Railways! Real Vintage Dolls Houses	The Secret World of Mini Railways! Real Vintage Dolls Houses by southwestforests Updated: Today at 2:28 PM
Sealab - What's in the Box! (a new issue of an old model kit I'd very much like) by southwestforests Updated: Monday at 8:50 PM 1 min read	Okay, so, how do I get my poverty level SSD to cover both this... by southwestforests Updated: Monday at 8:50 PM